A/70/335
minority groups in positions of domination vis-à-vis the majority, or for electoral
purposes. When ethical and human rights safeguards are not observed, disaggregation
of data on religious or ethnic grounds can easily be instrumentalized. The misuse of
data has been explained by a number of factors, including ideology, racism,
nationalism, political and administrative opportunism, or professional zeal on the part
of national statistical agencies or population registration administrative bodies in
cooperation with power entities such as the security or military forces. 9 In that
respect, the Special Rapporteur would like to underscore the importance of
establishing independent data collection institutions with a mandate strongly
grounded in international legal provisions and norms regulating such activities.
44. Moreover, ethnic statistics have been used in some instances as double -edged
swords to stigmatize certain social groups. That is especially true for crime
statistics. For example in Europe, Roma communities have often been
overrepresented among the prison population incarcerated for criminal offences, 10 as
is the case of African-Americans in the United States. Those statistics have been
used to generate stereotypes and the perception that those population groups have a
propensity towards crime because of cultural or certain innate characteristics.
45. If, therefore, the production of disaggregated data is essential for assessing and
addressing discrimination, the establishment and implementation of human rights
safeguards are prerequisites to collecting such data.
C.
Safeguards on sensitive data
46. The international human rights legal framework clearly provides that in order
to collect and process personal data, due regard should be given to the right to
privacy and the protection of data. Moreover, the process should be participatory
and based on informed consent and self-identification.
1.
Right to privacy and data protection
47. In its general comment No. 16 (1988), on the right to privacy, the Human Rights
Committee stipulated, inter alia, that the gathering and holding of personal
information on computers, data banks and other devices, whether by public
authorities or private individuals or bodies, must be regulated by law and that States
must take effective measures to ensure that information concerning a person’s private
life does not reach the hands of persons who are not authorized by law to have it and
it must never be used for purposes incompatible with the Covenant. In order to
guarantee privacy everyone should have the right to ascertain whether, and if so what,
personal data are stored in automatic data files and for what purposes. Everyone
should also be able to ascertain who controls or may control their files and if they
contain incorrect data or are contrary to the provisions of the law, they should have
the right to request rectification or elimination.
48. According to the Principles and Recommendations for Population and
Housing Censuses, ensuring confidentiality is crucial to achieving a successful
census. Clear information has to be provided as to the purpose of collecting
individual data, the sole aim of which should be the production of statistics, and
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See, for example, European Commission against Racism and Intolerance, “‘Ethnic’ statistics and
data protection in the Council of Europe countries” (2007).
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